When Hudsyn was first given the label cerebral palsy, Dan and I sat in that tiny doctors office and listened as the neurologist explained what the medical term actually meant. We nodded our heads partially in disbelief, yet also having a large amount of relief that we finally had a diagnosis.
The tough part came when he began talking about what we do next. Some part of me was really hopeful. Surely because this diagnosis is so common, there are a variety of things we can do to help our little girl live a full life. But after hearing the statements, We cannot repair brain damagethere is no cure for this outcome. So what we do now is treat symptoms and make her as comfortable and happy as possible by encouraging the healthy cells she has left to work hard and operate at maximum potential.
I felt like Id been punched in the stomach.
No cure? No way we can repair her brain to go back to what God had created for her in my womb? This wasnt supposed to be the way it ended. Give me the path, docanything. Ill do anything to help her get better. Will it take thousands of dollars to get a treatment that Id have to go to China to receive? Ill do it. But saying theres nothing you can dosome part of me refused to accept that. And Im very grateful I didnt. Because with hope and determination comes solutions.
We began prayinga lot. Then I began to researchanything I could get my hands on to help understand CP and what our life was going to be like in the future. It hurt because some of it was unbelievably difficult to imagine. I asked other parents. I found treatments like Cuevas Medek Exercise therapy, Hyperbaric Oxygen Therapy (HBOT), and a host of alternative treatments which I wrote about last May. But none of these proved to improve her condition significantly on their own.
And then, a glimmer of hope surfaceda mom on one of my support groups pointed me to a hospital in Panama City that was doing something called Stem Cell Therapy for kids with brain damageespecially those with the diagnosis of Cerebral Palsy. So I dug a little deeper and found videos like these:
Obviously, I was skeptical and so was Dan. I think his first statement after hearing that I was suggesting we take our daughter to Panama City to get stem cell injections was, Im sorry honey, but theres no way in hell were doing that.
I continued to research despite his skepticism and mine. I wanted to know more facts. Maybe we couldnt do it right now, but I wondered if this was a future possibility for her once it was approved in the U.S.
Cord banks in the U.S. are talking about itabout their healing and regenerative potential. As the master cells of the body, stem cells are the building blocks of blood, tissue, and organs. Cord blood stem cells are being used today to treat serious diseases like leukemia and sickle cell anemia. Theyre also being researched as treatment for conditions like cerebral palsy, traumatic brain injury (TBI), and hearing loss in clinical trials and lab research.
I continued my thirst of information by reading several books, articles, case studies and medical journals. I watched even more videos, presentations, listened to podcasts and audio recordings anything I could get my hands on to learn more about this type of therapy, but especially if it applied to kids and those with cerebral palsy. Below is a summary of the biggest points I pulled out of each resource:
Go here to read the rest:
Exploring Stem Cell Therapy for Cerebral Palsy | See the Seitz
- Human cells in a rat's brain could shed light on autism and ADHD - Kansas Public Radio - October 13th, 2022
- California is poised to phase out sales of new gas-powered cars - Kansas Public Radio - August 30th, 2022
- Doctors Transplant Kidneys to Children Without Need for Immune ... - July 11th, 2022
- The Future of Parkinson Disease Therapies and the Challenges With Stem Cell Therapies - Neurology Live - June 22nd, 2022
- Chemical Markers That May Unlock Future Therapeutic Uses of mRNA - Lab Manager Magazine - May 2nd, 2022
- Jayhawks shine at 2022 Capitol Graduate Research Summit | The University of Kansas - KU Today - April 19th, 2022
- Four researchers named recipients of the University Scholarly Achievement Award | The University of Kansas - KU Today - March 25th, 2022
- COVID-19 directly damages, creates scar tissue on the kidneys, study finds - WDAF FOX4 Kansas City - January 5th, 2022
- The controversy being created about the origins of the virus that causes COVID-19 - Frontline - July 6th, 2021
- Kelly lauds $21 billion state budget bill, vetoes $500,000 ... - June 6th, 2021
- [Full text] Binding of the SARS-CoV-2 Spike Protein | HMER - Dove Medical Press - April 15th, 2021
- IN8bio announces first-in-human Phase 1 trial Update from The University of Kansas Cancer Center using INB-100, IN8bio's Gamma Delta T-cell product... - December 4th, 2020
- Incysus Therapeutics Announces Name Change to IN8bio, Inc. - GlobeNewswire - August 28th, 2020
- Seeing through a forest of SCN2A gene variation - SFARI News - February 20th, 2020
- FHSU partners with Be the Match for bone marrow registry event - hays Post - February 20th, 2020
- Trial cancer treatment in Wichita - KAKE - December 2nd, 2019
- Infanticide: Live Organ Harvesting Commonplace in US Abortion Mills - Church Militant - October 17th, 2019
- Kansas Regenerative Stem Cell Seminar - Stem Cell Centers ... - September 10th, 2019
- Stem Cell Procedures | Motus Biologics of Kansas City - September 9th, 2019
- Stem Cell Therapy in Kansas City- Rejuvenate KC | Stem ... - April 26th, 2019
- Hip Stem Cell Treatment | Motus Biologics in Kansas City - January 23rd, 2019
- About Stem Cell Therapy - Kansas Regenerative Medicine - November 29th, 2018
- Stem Cell Therapy in Wichita, Kansas | Joint Pain Relief ... - October 6th, 2018
- Kansas Stem Cell Center Close To First Clinical Trial | KCUR - August 27th, 2018
- Knee Stem Cell Treatments in Kansas City | Motus Biologics - August 2nd, 2018
- Stem cells relieve chronic pain in Kansas City, MO - July 30th, 2018
- Adult Stem Cell Therapy 101, MSCTC - University of Kansas ... - July 7th, 2018
- Stem cells or Knee surgery - Kansas Regenerative Medicine - June 28th, 2018
- Future Fertility Fix? Egg-Producing Stem Cells Found in ... - October 14th, 2017
- Regenexx Kansas City | Helping your body heal itself - September 24th, 2017
- Feared Zika virus kills brain cancer stem cells, new research shows - Kansas City Star - September 8th, 2017
- Shawnee Woman Was Among First In The World To Undergo New FDA-Approved Cancer Therapy - KCUR - September 8th, 2017
- Paralyzed after pool accident, student heads back to college - Kansas City Star - August 30th, 2017
- About Us, Midwest Stem Cell Therapy Center - KUMC - August 30th, 2017
- Join Jon Kempin, LA Galaxy Foundation and Gift of Life Marrow Registry for Kick Blood Cancer on August 13 - LA Galaxy - August 12th, 2017
- Regenerative Medicine Market in the US - Forecasts, Segmentation, and Opportunity Assessment by Technavio - Business Wire (press release) - August 8th, 2017
- International Space Station's Crew Restored to Six People - Kansas City infoZine - July 30th, 2017
- Scientists build DNA from scratch to alter life's blueprint - Kansas City Star - July 30th, 2017
- Stem Cell Collection - University of Kansas Hospital - October 30th, 2016
- Stem Cell Therapy - North Kansas City Hospital, Kansas ... - October 14th, 2016
- Stem Cell Therapy | Kansas RMC - August 3rd, 2016
- Kansas to Build First US Stem Cell Research Center | CorCell - August 3rd, 2016
- Stem cell program - University of Kansas Medical Center - August 3rd, 2016
- Stem Cell Therapy for Urological Issues | Kansas RMC - July 29th, 2016
- Kansas Regenerative Medicine Center - October 19th, 2015
- Egg Stem Cells - MIT Technology Review - September 27th, 2015
- Doctors in Kansas who treat or diagnose Stem Cell Transplant - August 1st, 2015
- Stem Cells for Paralysis: First of Its Kind Study - April 7th, 2015
- Topeka retailer honored as 'business of the year' - March 7th, 2015
- Saint Lukes Mid America Heart Institute Offers Tips & Treatments For Heart Failure Awareness Week 2015 - February 10th, 2015
- Therapeutic potential of human induced pluripotent stem ... - November 5th, 2014
- Advisory Board, Midwest Stem Cell Therapy Center - November 2nd, 2014
- Myocardial infarction and stem cells - National Center for ... - October 31st, 2014
- Precise and programmable biological circuits - October 24th, 2014
- Stowers Researchers Reveal Molecular Competition Drives ... - September 6th, 2014
- Midwest Stem Cell Therapy Center, University of Kansas ... - September 1st, 2014
- Stem Cell History | A History of Stem Cell Research - August 23rd, 2014
- Kansas City MO Resources - Stem Cells: Get Facts on Uses ... - August 22nd, 2014